Dementia Coordination: Getting the Family on the Same Page

Dementia care isn’t just about the patient — it’s about the entire care circle. These tips help reduce miscommunication and stress between siblings, spouses, and extended family.

Key Takeaways

  • Assign one person as care lead or communicator
  • Centralize notes, meds, and doctor info
  • Discuss decisions together, not just in crisis

Suggested Prompts for Families to Consider

  • How can we make sure everyone hears the same updates?
  • What’s the best way to involve long-distance family?
  • Can we set expectations now about future care decisions?

Coordination Tips

  • Use Jaani to share visit notes and next steps with your care group
  • Normalize asking for help or time off
  • Document what your loved one prefers while they can still share

FAQs

Q: What if my siblings don’t agree? A: Disagreements happen. Try to bring in a neutral third party — like a doctor, social worker, or mediator.

Q: How do I keep everyone updated without constant texting? A: Tools like Jaani let you share updates in one place and loop in family members as needed.

🔗 Helpful Resources

  • NIA – Dementia Caregiving
  • NCOA – Dementia Support

Disclaimer: Jaani is a care coordination tool. The content in this post is for informational purposes only and is not medical advice. Always consult licensed healthcare professionals for diagnosis, treatment, or medical decisions.